Cystic Fibrosis clinic making great strides in quality care
Prestigious designation recognizes Hotel Dieu Hospital as a change leader
Patient Experience Advisor applauds new retail pharmacy at Hotel Dieu
Proceeds from Child Development Centre Run hit historic high
Food Blitz takes in 54,400 pounds of non-perishable goods
Now we can say health care is really looking up!
Patients, families and communities gearing up for the annual Great Strides Walk for Cystic Fibrosis Canada on May 31 have a chance to raise funds for vital CF care, innovation and research. They need look no further for all that and more at Hotel Dieu Hospital, where a busy CF clinic excels at helping those struggling to breathe every day.
Hotel Dieu is home to one of the longest standing accredited Cystic Fibrosis (CF) programs in Canada, currently caring for about 20 pediatric patients and 40 to 45 adults. Both populations are growing, says Dr. Richard van Wylick, medical director of the pediatric program, thanks to enhanced newborn screening, increasing survival rates and the much improved health of patients who make it to the adult years.
Hotel Dieu is quick to offers innovations in care as they become available, says Dr. van Wylick, pointing to significant new therapies such as Kalydeco, a prescription medicine for the treatment of CF patients ages six years and older who have one of several gene mutations. Kalydeco works to improve lung function and other aspects of CF such as increasing weight.
The hospital has also recently introduced an inconclusive diagnosis clinic for babies whose newborn screening indicates abnormalities along the spectrum of CF dysfunction. The new clinic stems from an international research study, co-authored by Dr. van Wylick, which demonstrated a proportion of infants with an inconclusive diagnosis will be diagnosed with CF within three years.
“About a dozen of our pediatric patients fit into this category and we’ve been following them in our general pediatric CF clinic,” he explains. “Now we’ve advanced to a dedicated clinic to ensure they receive the proper longitudinal follow-up.”
And the hospital’s CF program is ahead of the curve on screening CF patients for depression and anxiety, conditions that can co-exist with chronic illness and decrease the person’s capacity for managing his or her disease. Few Canadian CF clinics have a formalized screening system. At Hotel Dieu, however, research by CF Nurse Navigator Lisa Smith has spearheaded the creation of a screening tool in both pediatric and adult CF populations along with the development of valuable links with the hospital’s mental health program and community partners that have expertise in treating anxiety and depression.
“It’s a good and transferable model in an ambulatory facility such as Hotel Dieu where we increasingly see patients who have to manage chronic health conditions,” says Dr. van Wylick.
The footprint of the CF program has changed, too. After years of sitting alongside young CF patients in the Children’s Outpatient Centre, older patients now attend a clinic in newly developed adult clinic space on the hospital’s fifth floor. And, with the 2013 transfer of the Pulmonary Function Testing Lab from Kingston General Hospital to Hotel Dieu, clinics and diagnostic testing services are now conveniently located under one roof.
Even as the CF program evolves, one constant remains for the patients: the shared CF team. At age 18, patients “graduate” to the adult clinic, swapping physicians from Dr. van Wylick to respirologist Dr. Diane Lougheed but otherwise continuing with the same nurse, dietitian, physiotherapist, social worker and pharmacist. That smooth transition between pediatric and adult care is a definite bonus as maturing patients take on the challenging role of managing a chronic disease that, so far, has no cure.
In Kingston, the Great Strides Walk for Cystic Fibrosis Canada takes place Sunday, May 31. Participants can register 10:30-11 am in City Park, and the 5 km walk (with shorter routes available) begins at 11 am. A BBQ lunch by donation will be available after the walk, along with children’s activities.
Photos: The CF team at Hotel Dieu Hospital: The physicians change (pediatric CFpatients see Dr. Richard van Wylick, centre, and adult patients see Dr. Diane Lougheed, second from left) but otherwise patients enjoy continuity of care from an interprofessional team as they transition from the pediatric to the adult CF clinic.
Hotel Dieu Hospital has officially received its Best Practice Spotlight Organization (BPSO®) Designation after successfully completing a multi-year initiative aimed at improving outcomes for patients by advancing clinical excellence.
On April 16, the hospital officially received its BPSO® Designation at a ceremony in Toronto. Recognized worldwide, the new designation is the result of a three-year initiative during which the hospital implemented and evaluated five Best Practice Guidelines (BPGs) developed by the Registered Nurses’ Association of Ontario (RNAO) and based on the latest evidence and research.
The Hotel Dieu initiative focused on five areas of patient care: enhancing client-centred care; preventing falls and related injuries; assessing and managing pain; reducing foot complications for people with diabetes; and assessing and managing foot ulcers for people with diabetes. interprofessional teams dedicated themselves to implementing the BPGs, putting into place everything from new assessment practices to patient education materials to staff training modules.
“We selected guidelines that would have the greatest impact on the health and well-being of the patients and families we serve,” says Mike McDonald, Chief of Patient Care and Chief Nursing Executive. “We’ve now fully incorporated them into the hands-on practice of our nurses and allied health professionals, enhancing patient care and safety and also the quality of our work environment.”
In congratulating the hospital on achieving the designation, the President of the International Council of Nurses called Hotel Dieu “a positive change leader.”
“The impact of the BPSO initiative is evident through improved outcomes for patients, organizations and health systems,” says Judith Sharmian. “It is inspiring that the nurse-led program is being used so widely by nurses and interprofessional teams seeking to improve their practice to benefit the public.”
To date, there are 92 BPSOs encompassing 450 organizations in Canada, Australia, Chile, Colombia and Spain.
To view all the photos from the celebration held May 6, visit our Facebook Album.
Photo caption: BPSO champions at Hotel Dieu celebrate their well-earned designation as a Best Practice Spotlight Organization.
Patient Experience Advisor Sue Bedell brought her own personal experience to the formal process of selecting the new Lovell Drugs at Hotel Dieu Hospital, experience likely shared by patients and families who will appreciate the convenience of an onsite retail pharmacy.
“As a patient myself, I know that you’re not always up to par after a procedure,” she says, “and sometimes I’ve had a hospital visit when a snowstorm is raging outside. Having surgery or an appointment and then being able to come to the lobby, get a prescription filled and then head straight home can make a big difference.”
Built, owned and operated by Lovell Drugs, the pharmacy, which opened May 25, will provide additional choice to patients, families and staff who require prescriptions for medication or health care devices such as splints or crutches, says Elizabeth Bardon, Chief of Public Relations and Community Engagement at Hotel Dieu.
“Patients and families have told us that an on-site retail pharmacy would be a welcome service,” she says. “That proximity to the care environment allows them to choose to obtain medications or devices at the same visit as their clinic appointment, Urgent Care visit, procedure or surgery if they wish.”
Bardon says the new pharmacy will also provide additional strategies to support accurate medication reconciliation for patients and, for those patients with complex care needs, to improve awareness of the importance of taking medications as prescribed.
For Patient Experience Advisor Bedell, who represented patients and families on the hospital’s selection committee for a retail operator, the new drug store reflects Hotel Dieu’s focus on patient and family-centred care.
“Along with dispensing prescriptions it will also provide other patient-centred services such as medication reviews, home delivery and health information programs on smoking cessation and the flu,” she says. “These value-added benefits fit with the hospital’s reputation for providing excellent service to patients and families.”
Leasing hospital space to Lovell Drugs also provides Hotel Dieu with the opportunity to bring in additional and necessary revenues, says Bardon, noting that it is increasingly common to see pharmacies located within hospitals as a way to support patients who need prompt and easy access to retail pharmacy services.
The 750-square-foot pharmacy will be open 8:30 am to 5:30 pm, weekdays; it will be closed weekends and holidays. One pharmacist and at least one technician will be on duty during operating hours.
Photo caption: For Patient Experience Advisor Sue Bedell, the new retail pharmacy is a perfect expression of Patient and Family-Centred Care.
The final tally is in—and it’s the biggest one yet. As the result of tremendous community support, the 2015 Child Development Centre (CDC) Run raised more than $34,000 in April, funds that will help to support hundreds of children, youth and families in our region with special needs.
The Run shot past last year’s total by almost $10,000. In total, the Run event has now raised just over $203, 000 for specialized equipment and programs that support children and youth who have physical, neurological or developmental disabilities such as cerebral palsy, Down Syndrome and autism.
A total of 312 runners and walkers of all ages and abilities hit city streets on April 12 for the 19th annual event, which features a kid-sized 1 km run plus 5km and 10km walk/run events. For participants and donors alike, the event is an opportunity to contribute to the greater independence of children and adolescents served by CDC programs.
One family member expressed deep thanks, saying that the great staff and caring attitude of the CDC staff “have made a world of difference in our grandson’s life and those of my son and daughter-in-law.”
“What a wonderful outcome and what a fantastic event!” says CDC Director Margaret van Beers. “We thank everyone who participated and all those hardworking members of the Run organizing committee. The event went off without a hitch and just keeps getting better every year.”
To view all the photos from the CDC Run/Walk visit the UHKF Facebook Album.
Photo caption: Child Development Centre Run patient ambassadors Robbie and Abby help to announce the record-breaking amount of $33,904 raised from the walkers and runners in the 2015 event held April 12, 2015.
The Partners in Mission Food Bank is stocking its shelves with 54,400 pounds of non-perishable goods after hospital and community canvassers went door to door for the 30th Annual Hotel Dieu Hospital Food Blitz on May 13.
While the number is short of the Food Bank’s goal of 100,000 pounds, the organization’s executive director says that the difference is made up through an increasing number of third-party food collections occurring throughout the year.
“We’ve been able to consistently distribute just over 1 million dollars’ worth of food annually to those in need that has come directly from the community,” says Sandy Singers. “This means that we’re receiving the same amount of food donations, just in different ways.”
He says the Food Bank is now exploring a different model for its annual collection and hoping to roll that out next year.
“There’s plenty of time between now and then to work out the details and we’ll keep the public informed as we move forward,” he explains. “We remain extremely grateful to the Kingston community for their ongoing support over the last 30 years and we look forward to bigger and better things in the future.”
Singers encourages the community to continue with donations of non-perishable food items at grocery stores and also to remember that monetary donations are always welcome via the Food Bank’s website at www.kingstonfoodbank.net.
To view all photos from this blitz visit our Facebook Album.
Photo caption: Whatever your age, canvassing for the HDH Annual Food Blitz makes a big difference in the lives of many individuals and families in our community.
Ever spent time in the hospital looking at those white ceiling tiles and wishing you were somewhere else? Now, thanks to artist Donna Scanlan, that gaze upwards in some Hotel Dieu Hospital clinics will fill your eye with images of another place else altogether.
A retiree and 8 year-cancer survivor, Scanlan creates painted panels using 2-foot-by-2-foot and 2-foot-by-4-foot acoustical ceiling tiles as her canvas and acrylic non-toxic paints as her medium. She fills the panels with people, birds, landscapes and more, and then donates them to Canadian hospitals and treatment centres. The tiles meet hospital specifications for acoustics and fire rating, so the organization just has to remove an existing tile and replace it with a painted one.
On May 22, Scanlan landed at Hotel Dieu with six brightly coloured tiles for the Children’s Outpatient Centre, Diagnostic Imaging and specialized outpatient clinics on Levels 4 and 5. Images included a sweet little fawn, sleepy child, superhero, strong trees, birds and pastoral landscape.
“The tiles create a climate of fun that can foster well-being and spark the imagination,” says Scanlan, “and they can provide a good focal point for a loved one undergoing a painful procedure or for patients who need something to calm and distract them.”
The tiles are beautiful, says Elizabeth Bardon, Chief of Public Relations and Community Engagement. “For our very young patients, they will be a welcome distraction. I have no doubt the tiles will provide them with a wonderful surprise when they look up!”
Photo caption: Artist Donna Scanlan with one of her larger artistic ceiling tiles, now on display in the Diagnostic Imaging area.
Thank you for your interest in the Hotel Dieu Hospital. The information provided is general in nature. Specific health care questions are best discussed with your family physician.
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